T1resources.uk; rated, reviewed, reliable. A co-created website for people affected by type 1 diabetes.
Keywords:education, self-care, self-management, digital, T1 diabetes, young person, social media, peer support
People with type 1 diabetes (T1DM) spend many hours each year on self-care activities. They are often isolated and find it difficult to access trustworthy information online. T1resources.uk fills this gap: it is the first of its kind to provide a curated library of resources created for and by people with T1DM. The website is co-curated, with equal healthcare professional and peer representation and input. It signposts its users to pre-existing digital material, having first ensured their safety and usability using a robust review process. The website is low-cost, maximising on social capital. It houses a comprehensive range of resources that vary from peer blog posts to pdf files of sick-day rules. Each resource is catalogued under easy-to-navigate categories to make self-care as straightforward as possible. Since its launch in September 2016, over 7,500 users have accessed the website and feedback has been very positive both from healthcare professionals and people with T1DM.
Safford MM, Russell L, Suh D-C, Roman S, Pogach L. How much time do patients with diabetes spend on self-care? J Am Board Fam Med 2005;18(4):262-70. https://doi.org/10.3122/jabfm.18.4.262
Fisher L, Hessler DM, Polonsky WH, et al. Prevalence of depression in type 1 diabetes and the problem of over-diagnosis. Diabet Med 2016; 33(11):1590-7. http://dx.doi.org/10.1111/dme.12973
Trief PM, Xing D, Foster NC, et al. Depression in adults in the T1D Exchange Clinic Registry. Diabetes Care 2014;37(6):1563–72. http://dx.doi.org/10.2337/dc13-1867
Fisher L, Mullan JT, Arean P, et al. Diabetes distress but not clinical depression or depressive symptoms is associated with glycemic control in both cross-sectional and longitudinal analyses. Diabetes Care 2010;33(1):23-8. http://dx.doi.org/10.2337/dc09-1238
Fisher L, Gonzalez JS, Polonsky WH, et al. The confusing tale of depression and distress in patients with diabetes: a call for greater clarity and precision. Diabet Med 2014;31(7):764-72. http://dx.doi.org/10.1111/dme.12428
Gonzalez JS, Fisher L, Polonsky WH. Depression in diabetes: have we been missing something important? Diabetes Care 2011;34(1):236-9. http://dx.doi.org/10.2337/dc10-1970
Polonsky WH, Fisher L, Earles J, et al. Assessing psychosocial distress in diabetes: development of the diabetes distress scale. Diabetes Care 2005;28(3):626-31. https://doi.org/10.2337/diacare.28.3.626
Trigwell P, Taylor JP, Ismail K, et al. Diabetes UK Report "Minding the Gap", The provision of psychological support and care for people with diabetes in the UK. London: Diabetes UK,2008.
Heisler M, Vijan S, Makki F, Piette JD. Diabetes control with reciprocal peer support versus nurse care management: a randomized trial. Ann Intern Med 2010;153(8):507-15. http://dx.doi.org/10.7326/0003-4819-153-8-201010190-00007
Jennings A, Powell J, Armstrong N, Sturt J, Dale J. A virtual clinic for diabetes self-management: pilot study. J Med Internet Res 2009;11(1):e10. https://doi.org/10.2196/jmir.1111
Gilbert K, Dodson S, Gill M, McKenzie R. Online communities are valued by people with type 1 diabetes for peer support: how well do health professionals understand this? Diabetes Spectrum 2012;25(3):180-91. http://dx.doi.org/10.2337/diaspect.25.3.180
Toma T, Athanasiou T, Harling L, Darzi A, Ashrafian H. Online social networking services in the management of patients with diabetes mellitus: systematic review and meta-analysis of randomised controlled trials. Diabetes Res Clin Pract 2014;106(2):200-11. http://dx.doi.org/10.1016/j.diabres.2014.06.008
Health and Social Care Information Centre, Healthcare Quality Improvement Partnership, and Diabetes UK. National Diabetes Audit 2013–14 and 2014–15. Report 1: Care Processes and Treatment Targets. 2016. http://www.hscic.gov.uk/catalogue/PUB19900/nati-diab-rep1-audi-2013-15.pdf.
Good Things Foundation. Digital inclusion - facts for a digital nation. 2017 (accessed 15 June 2017). https://www.goodthingsfoundation.org/research-publications/digital-inclusion-facts-digital-nation-2014-update.
Davidson L. Is your social media usage higher than the average? The Telegraph 2015. http://www.telegraph.co.uk/finance/newsbysector/mediatechnologyandtelecoms/11610959/Is-your-daily-social-media-usage-higher-than-average.html.
Men's Health Forum. Engaging with men to improve their health: a toolkit for the voluntary sector. https://www.menshealthforum.org.uk/
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