#We are not waiting - DIY APS Do-It-Yourself Artificial Pancreas Systems: The story so far

Authors

  • Thomas Crabtree Royal Derby Hospital, University Hospitals of Derby and Burton
  • Bob Ryder Sandwell & West Birmingham NHS Trust
  • Emma Wilmot Royal Derby Hospital, University Hospitals of Derby and Burton

DOI:

https://doi.org/10.15277/bjd.2022.373

Keywords:

closed-loop, DIY, open-source, technology

References

Crabtree TSJ, McLay A, Wilmot EG. DIY artificial pancreas systems: here to stay? Practical Diabetes 2019;36(2):63-8. https://doi.org/10/1002/pdi.2216

Lewis D, Leibrand S, Open APSC. Real-World Use of Open Source Artificial Pancreas Systems. J Diabetes Technol 2016;10(6):1411. htttps://doi.org/ 10.1177/1932296816665635

Litchman ML, Lewis D, Kelly LA, Gee PM. Twitter Analysis of #OpenAPS DIY Artificial Pancreas Technology Use Suggests Improved A1C and Quality of Life. J Diabetes Sci Technol 2019;13(2):164-70. https://doi.org/ 10.1177/1932296818795705

Melmer A, Züger T, Lewis DM, Leibrand S, Stettler C, Laimer M. Glycaemic control in individuals with type 1 diabetes using an open source artificial pancreas system (OpenAPS). Diabetes Obesity Metab 2019;21(10):2333-7. https://doi.org/10.1111/dom.13810

Shaw D, Crabtree T, Hammond P, McLay A, Wilmot E. The DIY artificial pancreas system: an ethical dilemma for doctors. Diabetic Medicine 2020; 37(11):1951-3. https://doi.org/dme.14270

Crabtree TSJ, Choudhary P, Hammond P, Lumb A, McLay A, Wilmot EG. Health-care professional opinions of DIY artificial pancreas systems in the UK. Lancet Diabetes Endocrinol 2020;8(3):186-7. https://doi.org/10.1016/S2213-8587(19)30417-6

Crabtree TSJ, Choudhary P, Lumb A, et al. Association of British Clinical Di- abetologists, Diabetes Technology Network UK and Association of Chil- dren's Diabetes Clinicians Survey of UK Healthcare Professional Attitudes Towards Open-Source Automated Insulin Delivery Systems. Diabetes Ther 2022;13(2):341-53.https://doi.org/10.1007/s13300-022-01203-5

Crabtree T, Maslen A, McLay A, Wilmot E, editors. Basic and clinical science posters: Screening and prediabetes. Diabetic Medicine; 2020: Wiley 111 River Street, Hoboken 07030-5774, NJ USA.

ABCD nationwide DIY APS audit. ABCD nationwide DIY APS audit (UK) 2019 [Available from: abcd.care/diyaps.

Crabtree TSJ, Hussain S, Mendis B, et al, editors. Which do-it-yourself ar- tificial pancreas systems (DIYAPS) and used in the United Kingdom? Insights from the Association of British Clinical Diabetologists (ABCD) audit progamme. Diabetes Technology & Therapeutics 2022: ATTD 2022 abstracts: Abstract EP011/#282. https://doi.org/10.1089/dia.2022.2525.abstracts

Crabtree TSJ, Hussain S, Mendis B, et al. Glycaemic and safety outcomes associated with do-it-yourself articifical pancreas systems (DIYAPS): initial insights from the Association of British Clinical Diabetologists (ABCD) DIYAPS Audit Diabetes Technology & Therapeutics 2022: ATTD 2022 abstracts: Abstract OP072/#280. https://doi.org/10.1089/dia.2022.2525.ab- stracts

Knoll C, Peacock S, Wäldchen M, et al. Real-world evidence on clinical out- comes of people with type 1 diabetes using open-source and commercial automated insulin dosing systems: A systematic review. Diabetic Medicine 2021;39(5):e14741.https://doi/org/10.1111/dme.14741

Patel R, Crabtree TS, Taylor N, et al. Safety and effectiveness of do‐it‐your- self artificial pancreas system compared with continuous subcutaneous insulin infusions in combination with free style libre in people with type 1 diabetes. Diabetic Medicine 2022;39(5):e14793. https://doi.org/ 10.1111/dme.14793

Jeyaventhan R, Gallen G, Choudhary P, Hussain S. A Real-World Study of User Characteristics, Safety and Efficacy of Open-Source Closed-Loop Sys- tems and Medtronic 670G. Diabetes Obes Metab 2021;23(8):1989-94. https://doi.org/10.1111/dom.14439

Burnside MJ, Lewis DM, Crocket HR, et al. Open-Source Automated Insulin Delivery in Type 1 Diabetes. N Engl J Med 2022;387(10):869-81. https://doi.org/10.1056/NEJMoa2203913

Braune K, Gajewska KA, Thieffry A, et al. Why #WeAreNotWaiting— Motivations and Self-Reported Outcomes Among Users of Open-source Automated Insulin Delivery Systems: Multinational Survey. J Med Internet Res 2021;23(6):e25409.https://doi.org/10.2196/25409

Schipp J, Skinner T, Holloway E, et al. How Adults with Type 1 Diabetes Are Navigating the Challenges of Open-Source Artificial Pancreas Systems: A Qualitative Study. Diabetes Technol Ther 2021;23(8):546-54. https://doi.org/10.1089/dia.2020.0652

NHS England News. Patients with type 1 diabetes to get artificial pancreas on the NHS 2021 [Available from: https://www.england.nhs.uk/2021/ 06/patients-with-type-1-diabetes-to-get-artificial-pancreas-on-the-nhs/.

Roberts JTF, Moore V, Quigley M. Prescribing unapproved medical devices? The case of DIY artificial pancreas systems. Medical Law International 2021;21(1):42-68.https://doi.org/10.1177/0968533221997510

Braune K, Lal RA, Petruželková L, et al. Open-source automated insulin de- livery: international consensus statement and practical guidance for health- care professionals. Lancet Diabetes Endocrinol 2022;10(1):58-74. https://doi.org/10.1016/S2213-8587(21)00324-7

Downloads

Published

2022-12-22